Called Guiding an Improved Dementia Experience (GUIDE), this program recognizes that providing access to medical specialists, personalized care plans, round-the-clock helplines and care navigation specialists who assist with finding and arranging needed services will not only improve the quality of care for people living with dementia but will enable them to remain in their homes longer, as well as relieve some strain from the family caregiver.
Alzheimer's disease and related dementias are a significant concern nationwide. In the U.S., over 6 million adults aged 65 and older are currently living with Alzheimer's disease, representing approximately 11 percent of this age group. Additionally, more than 11 million unpaid family caregivers provide care for individuals with dementia, dedicating an estimated 18 billion hours annually to their loved ones. This immense burden of care underscores the pressing need for enhanced dementia care services and support for caregivers across the country.
When enrolled in GUIDE, patients maintain their own primary care physician and their current health system. Additional services are layered on top of existing care, creating a bridge between traditional healthcare and care at home. Some of the services provided through GUIDE include:
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A 24-hour phone line to give you access to experts who will answer your questions, as well as round-the-clock emergency medical services should you need them
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As much as $2500 annually in respite care, to allow family and friend caregivers time to manage other responsibilities, as well as to recharge
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Experienced Care Navigators to help you coordinate both healthcare and service needs, guiding you to the resources and programs right for you
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Education about the disease, how to manage challenging behaviors and assure that you’re prepared to provide the best possible care for your loved one
Also key to GUIDE is its focus on self-care for the family or friend caregiver, offering them stress-reducing, relaxation and fitness programs to help them maintain their own health and emotional well-being.
Families are free to pursue GUIDE services delivered by any health system, regardless of where you go to receive primary care. The Center for Medicare has indicated that they will send letters to eligible Medicare participants by the end of the year, which will include GUIDE providers in their area. You can also ask your primary care doctor for more information, or visit the FAQ page on the CMS website to learn more.